Should parental refusals of newborn screening be respected?
نویسنده
چکیده
This is a pre-copyedited, author-produced PDF of an article accepted for publication in Cambridge Quarterly of Healthcare Ethics following peer review. The definitive publisher-authenticated version [Newson, A.J. (2006) “Should parental refusals of newborn screening be accepted?”, 15(2): 135-146.] is available online at http://journals.cambridge.org/action/displayAbstract?fromPage=online&aid=406388&fileId=S0963180106060166
منابع مشابه
CLINICAL ETHICS Parental consent for newborn screening in southern Taiwan
Objects: With the advent of genetic technologies, many genetic/metabolic disorders can be detected asymptomatically but might be untreatable, and the benefits and risks of screening for them are not fully known. The purpose of this study is to explore current practice with regard to the parental consent process in newborn screening (NBS). Design: Staff in 23 obstetric clinics/hospitals that con...
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متن کاملScreening of Newborns for Disorders with High Benefit-Risk Ratios Should Be Mandatory.
Newborn screening has evolved to include an increasingly complex spectrum of diseases, raising concerns that screening should be optional and require parental consent. Early detection of disorders like PKU and MCAD is essential to prevent serious disability and death in affected children. These are examples of high benefit-risk ratio disorders because of the irrefutable health benefits of early...
متن کاملPublic Awareness of and Attitudes toward Newborn Screening
Objectives: To understand public awareness of newborn screening and public views on criteria needed for a disorder to be included in universal newborn screening. Methods: Adults in waiting rooms of internal medicine and pediatric clinics completed a survey. Results: 55% of participants (n=213) were unaware that all newborns are screened at birth for certain disorders. Nearly 60% supported scree...
متن کاملParental consent for newborn screening in southern Taiwan.
OBJECTS With the advent of genetic technologies, many genetic/metabolic disorders can be detected asymptomatically but might be untreatable, and the benefits and risks of screening for them are not fully known. The purpose of this study is to explore current practice with regard to the parental consent process in newborn screening (NBS). DESIGN Staff in 23 obstetric clinics/hospitals that con...
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ورودعنوان ژورنال:
- Cambridge quarterly of healthcare ethics : CQ : the international journal of healthcare ethics committees
دوره 15 2 شماره
صفحات -
تاریخ انتشار 2006